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Step one – We admitted that we were powerless over our addictions and that our lives had become unmanageable…

 

The first step is the hardest.  Admitting your life is a mess is hard enough.   Admitting that you’re the one who got it in that mess is even harder.  

I’ve haven’t touched drugs in 10 years.  Been sober for 8.  Haven’t smoked in 2. 

The drugs I don’t miss.   I was never that heavily into that culture and gave it up easily.  Drinking and smoking were much harder.

There’s been a lot of study done on addictions, and I won’t pretend to understand half of it.  Nor will I bore you with it.   That’s not the purpose of this blog.   Instead, we’re gonna talk about my experience with addiction.

I quit drinking to see if I could.  To see what would happen.  After repeated failing what I later learned was the CAGE questionnaire, which is as follows:

Two “yes” responses indicate that the possibility of alcoholism should be investigated further. The questionnaire asks the following questions:

  1. Have you ever felt you needed to Cut down on your drinking?
  2. Have people Annoyed you by criticizing your drinking?
  3. Have you ever felt Guilty about drinking?
  4. Have you ever felt you needed a drink first thing in the morning (Eye-opener) to steady your nerves or to get rid of a hangover?

I never said yes to number 4.   Never drank before noon. 5 on Sundays.   Don’t ask.  I still don’t know.  

The months that followed were terrifying.  I had nothing to numb my emotions.  For the first time since I was 12, I didn’t have my little crutch.   I actually had to face what I was feeling and feel. 

I was stone cold sober for 6 years before I went to controlled drinking which was halted when allergies prevented me from drinking beer which was the only thing I was allowing myself.   So now I’m back to no alcohol.  

I smoked for over a decade.   I quit when I got so sick breathing was painful and I was in a nyquil coma for 3 days.   If you don’t smoke for three days, why smoke on the fourth, right?  Quitting smoking was initially easier than quitting drinking, but long term, it’s been harder to deal with.

Maybe it’s because of how ingrained smoking was for me, that it was such a coping mechanism, I don’t know, but I still miss it, 2 years later.  

I still dream of smoking.   I don’t dream  about booze, but I dream about cigarettes.   I dream about smoking, about having them hidden, and I’ve woken and been visibly upset that it was just a dream.  

Addiction is a powerful thing.  It’s not just physical.  It’s got a psychological component, and that psychological component will permeate every core of your existence.  The physical symptoms fade.  The psychological symptoms haunt, even years later.   I still get nostalgic looking at a whiskey bottle, thinking of good times.   Of course, I also remember the stupid things I did and that makes it a little less of a fond memory.  

Addiction is powerful.  Years later, I still struggle.   I know I can never touch whiskey or wine again.  I know I can’t smoke.   I know how easy it would be to pick the habits back up.  And I know that I would stand to lose everything.

I came to step two: realizing that a power greater than myself could restore me to sanity.

And step 3: turned my life over to god, as I understood him,

My name is Agnese, and I am an addict.   I’ve just been sober a long time.

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Just another meme? Maybe. Hopefully not.  This is my contribution to Invisible Illness Awareness Week…you can check it out at: Invisible Illness Week.

1. The illness(es) I live with is: Fibromyalgia, Chronic Fatigue Immune Dysfunction Syndrome, Allergies, Asthma, Bipolar disorder, arthritis

2. I was diagnosed with it in the year:  starting at birth

3. But I had symptoms since: birth

4. The biggest adjustment I’ve had to make is: Not doing everything

5. Most people assume: I’m just blowing things off

6. The hardest part about mornings are: getting out of bed….morning aches and pains

7. My favorite medical TV show is: Royal Pains

8. A gadget I couldn’t live without is: My ipad

9. The hardest part about nights are: 3 am

10. Each day I take 10 + pills and vitamins

11. Regarding alternative treatments I: depends on the treatment.   

12. If I had to choose between an invisible illness or visible I would choose: Mine vary between visible and invisible.   I like the invisibility

13. Regarding working and career:  something I have to do

14. People would be surprised to know:  I cry at least once a week

15. The hardest thing to accept about my new reality has been: that life without pain is a memory.

16. Something I never thought I could do with my illness that I did was: learn to let go

17. The commercials about my illness: make it seem like no big deal

18. Something I really miss doing since I was diagnosed is: running

19. It was really hard to have to give up: having every minute planned

20. A new hobby I have taken up since my diagnosis is: Writing.

21. If I could have one day of feeling normal again I would: I can’t remember this

22. My illness has taught me: vulnerability.  Strength, courage, compassion

23. Want to know a secret? One thing people say that gets under my skin is: But you look so healthy

24. But I love it when people: treat me as if I’m healthy

25. My favorite quote that gets me through tough times is: “If I say why me about this, then I have to question why me on every good thing that has ever happened to me.”  Arthur Ashe

26. When someone is diagnosed I’d like to tell them: Don’t be afraid to talk about it.   Keeping it inside doesn’t help anyone

27. Something that has surprised me about living with an illness is: How much I can do if I give myself time to do it

28. The nicest thing someone did for me when I wasn’t feeling well was cook and clean for me

29. I’m involved with Invisible Illness Week because: I want to share my story

30. The fact that you read this list makes me feel: grateful

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I’ve been slacking.   Part of living my life transparently is blogging and I haven’t been doing that.   So today, I’m gonna blog.    And try to get better at this.  No promises though.

But anyways, conversations on twitter have gotten me thinking and there’s only so much I can say in 140 characters or less.   So, that means it’s time for a blog entry.   Some of you know that I’m bipolar.   Those of you that didn’t, know now.  Recent events have me wanting to talk about this.

Most of the time, I’m pretty level.   I’ve got meds on board now and things are good.   I have my ups and downs, but they’re little waves, not dramatic spikes like they once were.    But even with it under control, it’s something that I always have on the back of my mind.   Every little mood swing, every sleepless night…..is this normal, or the bipolar…   But it’s so much better than it used to be.

It took a long time to get my diagnosis.   After all, I never talked to my doctor when I was up.   Only for the depression.   So, initially they thought that I had unipolar depression that they just had difficulty treating.   They’d put me on antidepressants, I’d swing up and down and up and down with just a wider range to the ups than before.  I was diagnosed with ADD for the manic symptoms (inability to sit still, focus, etc.)   The ADD meds helped, but didn’t solve the problem either.

Initially, the depressed episodes were the worst part.   The mania was short lived and short peaked.   It manifested in the ADD symptoms and sleepless nights.   I could live with that.   I didn’t know what it was at the time.   The depressed episodes grew intense.   I was tearful and felt hopless.   Anxiety set in and I turned to self injury.   I ended up flunking out of my first attempt at college because of the depressive symptoms.

Eventually the manic symptoms got more intense and the depressive symptoms lessened.   The best way to explain it was the world was spinning faster and faster and I just wanted a moment to sit down and catch my breath, and nothing was allowing me to do that.   This finally culminated in a suicide attempt at 22.  Nothing anyone could have said would have changied my mind.  This attempt wasn’t about depression.   It was from mania.   It wasn’t really an attempt to die.   It was an attempt to slow the world down, to sleep.   If I ended up dying, I ended up dying.

The scariest thing I’ve ever experienced was the hospital.   I have fragmented memories of the initial hospital experience.   I remember moving, pain and bright lights.   I assume, they were the stretcher, trying to get the IV in (judging by the bruises) and coming in and out of consciousness.   I remember waking up in Intensive Care and not knowing where I was, not knowing what happened.   No one told me what happened for 2 days, until I was transferred over to psych and met with the psychiatrist.

I was then diagnosed as bipolar and first introduced to mood stabilizers which have been my saving grace.   I won’t ever go off of them.   I tried to go off antidepressants and eventually asked to go back on them.   I realize that this is a life long journey for me.   I know that the scars on my arms are permanent, and I don’t like to look at them every day when I get dressed (I never wear just a tank top for that reason).   But, I’m here to still look at them.   And that counts for something.

 

And closing with Alanis again:

You see everything

you see every part

you see all my light

and you love my dark

you dig everything of which I’m ashamed

And you’re still here (I hope)

 

 

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Fear

I’ve always been the tough girl.  Not much scared me.  Growing up, I was the one climbing to the tops of trees…and falling out of said trees.  (My middle name would be Ann, not Grace.).   I was the one who begged for a pet snake and loved flipping over rocks to see what critters lurked underneath.  In fact, the list of things that scare me is pretty short: centipedes (too many legs), and people messing around with my ears.   I was scared of water, but I jumped in a lake to get over that.

I’ve had issues with Eustachian tube dysfunction for years.   And it’s finally getting to the point where I can’t take it anymore.   All the other remedies…the antihistamines, steroids, decongestants are not keeping the ear fluid away.   The ear drops are failing to work for the pain because, guess what, they no longer go down the Eustachian tube.  In short, I’m miserable.   It’s also affecting the hearing.  In my good ear.  And when you only have one good ear, you get a little bit protective of it.

So, I’m faced with facing my fear.   I’m going to have to go back to the Ear, Nose and Throat specialist, which I said I’d never do because they poke around way too much in your ears and that freaks me out.  I end up with a panic attack which I HATE.   But, I need to do it.   I need to change.   A good friend of mine and I toss the following quote back and forth, “People change for 2 reasons: they’ve either learned enough that they want to, or they hurt enough that they have to.”   Well, I’m in enough pain that I need to do something.  I’m also learning.  I’m learning that this could affect the hearing in the ear that doesn’t have hearing loss.   That I’m going to get more ear infections.  That this isn’t going to resolve on its   So, I want and have to change.   I have to face this fear.

I have to go in, and let someone poke around in my ears,  go through another hearing test (which I hate), and then, in all likelihood, get tubes placed in at least one ear, which involves them cutting in my ear.   I’m scared.  I don’t want to do this, but I know I can’t live this way either.   So, it’s time to be brave.   It’s time to channel that girl I was so long ago and face this.

I think I’ll keep centipedes on the list though.

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A picture that makes you laugh:

Nuff said.

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A picture of your most treasured possession:

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The green rosary is one my dad bought me on a trip to Washington DC. I am a Marian Catholic and my faith is the cornerstone of my existence. It’s what’s kept me alive through some of the darkest times in my life. My parents may not totally share my beliefs, but the are supportive.

The red chaplet is the Chaplet of the Precious Blood that I inherited from my grandmother when she died. She had showed it to me once before she died, and that night in the apartment,no one knew what I was talking about. At first, no one could find it, and then I asked for guidance as it was the only thing of hers I wanted and then was able to open a drawer straight to it.

These are two of my most treasured possessions because my faith has been encouraged my whole life by those around me, whether the believe it as strongly as I do or not.

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Someone You Wish You Could Trade Places With:

Lindsey Vonn:

I grew up on skis as you can see from a previous entry.  I also used to race.  I loved racing.  And I was stupid about it.   I got into a fight with my dad over the pressure of it and how he said I’d never make it anywhere.   And I quit.  For 3 years, I only skied recreationally and refused to enter a single race.  Then, I got over myself and started racing again.  After that season, I got sick and was eventually diagnosed with Fibromyalgia and Chronic fatigue immune dysfunction syndrome.   Every year since then, something has kept me from getting out there, whether it’s been health issues, work, or injury issues (damn post concussion syndrome this year).

So, Lindsey Vonn gets my pick.  I had my dream.  I gave it up, was starting to get it back and got sick.  She’s living it.   My hope is just to make it back out there again now.

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A picture of your favorite memory.

Me learning how to ski in Michigan. These will always be my most fondest memories. I’m an awkward klutzy person by nature, except when I’m skiing. Suddenly, when I’m skiing, I have grace and coordination and know exactly what to do. I can’t het out there any more as much as I’d like, but skiing will always be my favorite memory because it took an awkward girl and helped her find a place she belonged.

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A picture of your favorite night:

Yes, that’s my bed.   My life is crazy and hectic with work and school and volunteer commitments.  I’m always rushing from one thing to another, and there’s never enough time in a day for time to myself.   In fact, for lent, what I ended up giving up was sleep deprivation.    If I take extra time for myself, it usually means I’m pushing off something for the next day or I’m sick or really in pain.

So my favorite nights are the ones where I have time to just stretch out with my laptop or ipad, or both and just relax, watch TV and have nothing on my mind.

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I grew up in the Family Ties Era.   I remember watching it at night, wishing I could just slip into the TV and become part of the Keaton family, because the Keaton’s seemed like a perfect family, and well, mine…wasn’t.

I mean, yeah, they had their difficulties and conflicts, but they always worked them out and to my 8 year old self, this was heaven.   I dreamed of having a dad like Steven Keaton, that was, you know, not at work all the time, that would take me outside and play catch with me or watch a baseball game with me.   One that I didn’t have to wake up in what felt like the middle of the night (but back then was really only like 11 pm) to see.   I dreamed of having a mom like Elyse that I could go to for advice, that would tell me things were going to be all right, instead of the other way around.

I was about the age of Jennifer during the show run, and I longed for older siblings like Alex and Mallory.  Sure, Alex could be obnoxious and Mallory was kind of shallow and self absorbed, but in the end, both always did the right thing and looked out for their little sister.  In reality, it was me, looking out for everyone else.

I watched this show for the happy episodes and the sad, sometimes actually feeling like I was a part of it…always wishing I was.

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